Detalhe da pesquisa
1.
Health-Related Quality of Life and mental health of families with children and adolescents affected by rare diseases and high disease burden: the perspective of affected children and their siblings.
BMC Pediatr
; 22(1): 596, 2022 10 14.
Artigo
em Inglês
| MEDLINE | ID: mdl-36229869
2.
The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?
Health Qual Life Outcomes
; 18(1): 219, 2020 Jul 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-32646436
3.
[The Need for Psychosocial Support in Parents of Chronically Ill Children]. / Psychosozialer Unterstützungsbedarf von Eltern mit schwer chronisch somatisch erkrankten Kindern.
Prax Kinderpsychol Kinderpsychiatr
; 66(9): 687-701, 2017 Nov.
Artigo
em Alemão
| MEDLINE | ID: mdl-29111898